Please Read This Before You Go Under the Knife:
How to Find an Expert Surgeon
If you have ever talked to a group of men who have had surgery for prostate cancer, you may have heard some stories that just break your heart. We have. Those stories are particularly upsetting for us here at the Prostate Cancer Foundation, because we work with some of the best surgeons in the world. We know that the complications from surgery to remove the prostate – a radical prostatectomy, performed either in open surgery or in laparoscopic form using a robot – ought to be minimal. But often, they are devastating.
A bad surgeon can ruin your life.
So please hear this advice and take it to heart:
Find the best surgeon you can. Get it done right.
Radical prostatectomy is a very difficult operation. It takes not only skill, but the kind of expertise you get only after being involved in a lot of procedures, first from the sidelines as a doctor in training, and then learning how to do it meticulously with the guidance of an expert surgeon.
The very best prostate surgeons specialize in the prostate. That’s often all they do, and they do a lot of these procedures every year.
You don’t want to be part of the learning curve.
Another point: Because there are so many bad surgeons out there, you can’t trust everything you read on the internet or from hospitals’ propaganda.
Our goal is to weed out the bad surgeons, so they stop doing procedures they aren’t skilled enough to do.
As for you, well, this is your one shot at this. Do your due diligence. How can you find the right surgeon? We have developed this checklist with the help of three experts. Please. Take the following things into consideration before you go under the knife:
- Find a high-volume center that does a lot of these procedures. Often, this is an academic medical center. An added benefit here is that if they do a lot of these, and do them well, then everyone is going to be better at helping you. The nurses know how to take care of recovering radical prostatectomy patients, and there is a wing or set of beds just for those men – and not also appendectomy or hysterectomy patients, whose post-op needs are very different. How do you find a high-volume center? Edward Schaeffer, M.D., Ph.D., Chairman of Urology at Northwestern University, says, “This can be hard, but I always refer patients to two websites that can help.” One is the National Cancer Institute’s website, which designates “cutting-edge cancer treatments to patients in communities across the United States.” http://www.cancer.gov/research/nci-role/cancer-centers/find And the other is a website showing National Comprehensive Cancer Network-designated cancer centers. “NCCN Member Institutions pioneered the concept of the multidisciplinary team approach to patient care and lead the fight against cancer as they integrate programs in patient care, research, and education.” NCCN writes the guidelines for how to screen and care for all types of cancers, including prostate cancer. That website is: https://www.nccn.org/patients/about/member_institutions/qualities.aspx
- Look for a place where different specialties work together. Top centers have multidisciplinary teams – experts from different specialties including urology, radiation oncology, medical oncology, and pathology – working together on prostate cancer. Some men are perfect candidates for surgery; others might do better with radiation, and if you are one of those, you need to at least speak with a radiation oncologist before you decide on surgery. Other men need to talk to a medical oncologist, as well. Prostate cancer is a complicated thing, and there is no “one-size-fits-all” answer for every patient. With the multidisciplinary approach, you get the opinion of a team of experts, not just one, and the benefit is a more thorough and thoughtful approach to your treatment.
- Ask the surgeon about results: Does he or she keep results? For how many years? The best surgeons, like Patrick Walsh, M.D., at Johns Hopkins, follow their patients for life – so they know, 20 years after the fact, whether the PSA is still undetectable, whether there was any incontinence, whether erections returned on their own or with help from medications or other treatments, etc.
- Then double-check. “To be honest, in my experience some surgeons lie,” says urologic oncologist Trinity Bivalacqua, M.D., Ph.D., at Johns Hopkins, “and it’s hard to determine when someone is not being truthful. The most important factor is the reputation of the institution and the department, as well as the surgeon. One thing that helps is asking the surgeon to provide you with names of his or her patients who have agreed to speak to other patients about their experience. This is very helpful, and will show that the surgeon has happy patients, cares enough to put this together, and knows the importance of a large support network to help a cancer patient decide what’s best for him.”
- Are any of the surgeon’s patients willing to talk to you? You can hear it from the “horse’s mouth” what recovery was really like.
- How many radical prostatectomies has the surgeon done? The answer should be in the hundreds. If it’s something like “several,” do not walk away – run!
- Ask more than one doctor to recommend the best prostate surgeon in your area. (Note: Some doctors are in practice groups, and recommend the specialist in that group. This is why it’s good to ask different doctors in different practices.)
- Beware of the reviews or ads on the internet. “It is unclear to me who actually goes to these sites and makes the comments,” says Schaeffer. Maybe it’s the patients; maybe it’s a buddy of the doctor putting in a rave review to get the number of five-star listings up. Or maybe it’s a disgruntled colleague, or a competitor hoping to drive business away from that surgeon. Who knows? For the most part, says urologist Stacy Loeb, M.D., M.Sc., at New York University, “Online reviews are totally unreliable, so I am hesitant to tell men to rely on them.” Research has shown poor correlations between online reviews with outcomes, she adds, “so I am wary to recommend something that could be misinformative. Speaking to other patients and local doctors is a much better idea.” Loeb also recommends that you check with prostate cancer support groups in your area, and ask these men about their own experience and advice on a surgeon. “The internet is full of false accusations and glamorization of surgeons and the hospital or department,” says Bivalacqua. A lot of hospital websites, he adds, “advertise something that is often not present or real. I know this is a sinister way of thinking about things, but it’s the reality of our society and medical profession.”
- And finally, don’t worry about offending the doctor with questions or by getting a second opinion. You don’t get to be a surgeon without being something of a tough cookie. People ask for second opinions all the time. Patients ask questions all the time. You are paying the doctor, not the other way around. (Note: That doesn’t mean you should be rude or disrespectful; it just means you shouldn’t feel intimidated or like you are being a bad guy simply for doing your homework.) If the situation were reversed, do you think your doctor would not make every effort to find the best possible surgeon? It’s your prostate, it’s your recovery, it’s your life. You don’t want to be one of those guys saying afterward, “My surgeon was not very good.”
Terms to know from this article:
Surgery to remove the entire prostate. The two types of radical prostatectomy are retropubic prostatectomy and perineal prostatectomy.
A doctor who specializes in treating cancer. Some oncologists specialize in a particular type of cancer treatment. For example, a radiation oncologist specializes in treating cancer with radiation.
Inability to control the flow of urine from the bladder (urinary incontinence) or the escape of stool from the rectum (fecal incontinence).
A doctor who has special training in diagnosing and treating diseases of the urinary organs in females and the urinary and reproductive organs in males.
prostate-specific antigen (PSA): A substance produced by the prostate that may be found in an increased amount in the blood of men who have prostate cancer, benign prostatic hyperplasia, or infection or inflammation of the prostate.